Vision-Targeted Health-Related Quality-of-Life Survey for Evaluating Minimally Invasive Glaucoma Surgery.
Cui Qi N, Hays Ron D, Tarver Michelle E, Spaeth George L, Paz Sylvia H, Weidmer Beverly, Fellman Ronald L, Vold Steven D, Eydelman Malvina, Singh Kuldev
AI Summary
Researchers developed a new patient-reported survey (Glaucoma Outcomes Survey) to assess health-related quality of life in glaucoma patients considering MIGS. This tool will help understand MIGS's impact on patients' vision-targeted well-being.
Abstract
Purpose
To develop a vision-targeted health-related quality-of-life instrument for patients with glaucoma who are candidates for minimally invasive glaucoma surgery (MIGS).
Design
Development of a health-related quality-of-life instrument.
Participants
Twelve practicing ophthalmologists and 41 glaucoma patients.
Methods
A questionnaire was constructed to assess functional limitations, vision-related symptoms, aesthetics, psychosocial issues, and surgical satisfaction for MIGS candidates. Questions were drafted after a review of the literature and subsequently refined based upon input from 1 physician and 4 patient focus groups. Nineteen cognitive interviews were used to ensure that questions were understandable to respondents.
Results
The focus group identified the following key issues and concerns as being important to glaucoma patients: functional limitations (eg, driving), bodily discomfort (eg, stinging from drops), changes in appearance (eg, drooping eyelid), and psychosocial concerns (eg, mental burden associated with a diagnosis of glaucoma, financial burden of treatment). Cognitive interviews resulted in the following improvements to the questionnaire: changes in wording to clarify lighting conditions, and additional questions addressing psychosocial issues, such as job loss, severity of disease, and perception of MIGS.
Conclusions
A patient-reported outcomes instrument, the Glaucoma Outcomes Survey, was developed to evaluate MIGS for patients with mild to moderate glaucoma. Next steps include electronic administration to patients selected from the American Academy of Ophthalmology Intelligent Research in Sight (IRIS) registry. An electronic patient-reported outcomes platform will be used to administer the questionnaire before and after MIGS. The questionnaire will improve understanding of how surgical interventions such as MIGS impact vision-targeted health-related quality-of-life in glaucoma patients.
MeSH Terms
Shields Classification
Key Concepts5
The development of the Glaucoma Outcomes Survey involved input from 1 physician and 4 patient focus groups, identifying key issues such as functional limitations (e.g., driving), bodily discomfort (e.g., stinging from drops), changes in appearance (e.g., drooping eyelid), and psychosocial concerns (e.g., mental burden, financial burden of treatment) as important to glaucoma patients.
Nineteen cognitive interviews were used to refine the Glaucoma Outcomes Survey, leading to improvements such as changes in wording to clarify lighting conditions and additional questions addressing psychosocial issues like job loss, severity of disease, and perception of MIGS.
The Glaucoma Outcomes Survey, a patient-reported outcomes instrument, was developed to evaluate minimally invasive glaucoma surgery (MIGS) for patients with mild to moderate glaucoma.
A vision-targeted health-related quality-of-life instrument, the Glaucoma Outcomes Survey, was developed for patients with glaucoma who are candidates for minimally invasive glaucoma surgery (MIGS).
The Glaucoma Outcomes Survey will be electronically administered to patients selected from the American Academy of Ophthalmology Intelligent Research in Sight (IRIS) registry, both before and after minimally invasive glaucoma surgery (MIGS), to improve understanding of how MIGS impacts vision-targeted health-related quality-of-life in glaucoma patients.
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